2018 Summer Scamper Patient Heroes
When you fundraise or donate through Summer Scamper, you bring care, comfort, and cures to children and families like our brave Patient Heroes.
The Gilliam family calls Summer Scamper “Koen’s Race.” They treasure the event as an annual milestone marking just how far their beloved Little Dude has come.
Born with a depressed heart rate causing damage to his brain, Koen was rushed to our hospital within an hour of his birth to get access to the life-saving technology, cutting-edge research, and expert care he needed. He spent the first month of his life in our neonatal intensive care unit and intermediate nursery.
Koen’s parents, Nickole and Ryan, weren’t able to hold him right away, but every day nurses encouraged them to be involved and nurture tiny Koen.
“They made sure we felt like we were still parents by letting us do what we could like change diapers, wash his face, and feed him little drops of milk,” remembers Nickole. “From the beginning, the doctors and nurses gave us reason to hope. We continue to live through the advice we received from his neurologist who said brains can do amazing things when kids are young, so do not place any limits on what is possible.”
Read Koen's full bio on our blog.
When Noor celebrated her first birthday last summer, her family and friends were filled with appreciation and excitement.
“We didn’t know if we would ever get here,” recalls Noor’s mother, Reema.
Shortly after birth, a condition called biliary atresia caused Noor’s liver to fail and led to a domino effect throughout her tiny body. At Lucile Packard Children’s Hospital Stanford, she spent the majority of her time in the intensive care unit and as the situation worsened, was placed on dialysis and intubated. A liver transplant was her only hope.
Read Noor's full bio on our blog.
Criss was 23 weeks pregnant with her twin girls, Alexia and Celeste, when prenatal tests showed that the babies had signs of congenital heart defects.
In the midst of grieving the diagnosis, Criss and her husband, Americo, also learned there was hope—their doctor in Roseville recommended they seek the help of the expert care team at Lucile Packard Children’s Hospital Stanford.
“Within days, I was walking through the doors of the hospital that would change our lives forever,” says Criss.
At Packard Children’s, Criss met with obstetricians, neonatologists, geneticists, and a nephrologist who conducted a series of blood tests, urine samples, ultrasounds measuring fetal growth, and finally, the highly anticipated scan to see the twins’ heart defects. The anomalies seen in the girls’ hearts, kidneys, and umbilical cord were consistent with 22q11.2 Deletion Syndrome, a chromosomal disorder that can affect nearly any part of the body.
Read the twins' full bio on our blog.
Last summer, Lucca received shocking news. In intense pain, with what he originally thought was a sinus infection, Lucca underwent a CT scan and MRI at his local children’s hospital in the Central Valley.
The diagnosis: Juvenile Nasopharyngeal Angiofibroma, a rare, benign, but highly invasive tumor growing in the back of his nasal cavity.
Your support of cancer research at Packard Children’s means that we are a leader in the treatment and care of rare conditions like Lucca’s. The doctors referred Lucca to our Bass Center for Childhood Cancer and Blood Diseases and he was rushed by ambulance to Palo Alto.
“We were scared and didn't know what to expect,” says Lucca’s mom, Suzie. “Valley Children’s had already informed us that it would require two surgeries. We had gone from sinus infection to tumor and two surgeries in a matter of hours. We were very concerned, but we knew we were in good hands.”
Read Lucca's full bio on our blog.
Sienna is one sassy 6-year-old. She loves to strike a pose and already has her runway strut perfected. Her presence in front of the camera is magical.
One blogger wrote this about Sienna: “I was blown away by the presence, the strength, and the love of this little girl.”
Sienna is remarkable for many reasons. One is that she has autism and does not communicate verbally. Her mom, Karyn, discovered that Sienna can express herself through modeling and fashion. Sienna’s photos and story show that there are no limits for children with autism. She has become an inspiration for people around the world and has nearly 20,000 Instagram followers!
“Through modeling Sienna can express herself without words,” says Karyn. “She can emote feelings that you can see in her eyes or body language. Every time she gets in front of the camera she becomes more confident. At a fashion show she has the chance to make friends and live a very ‘normal’ life even for just one day. She gets to be one of the girls, and dress up like a princess. Seeing Sienna become more social every day and come out of her shell gives me goosebumps. Two years ago, she would not even acknowledge anyone.”
Read Sienna's full bio on our blog.
When asked what he’d like to say to donors who support Summer Scamper and Packard Children’s, Yassen simply says, “I love you.”
The 6-year-old’s personality is twice as big as he is—Yassen easily gets a room full of adults laughing with his witty responses and funny sayings. He introduced his little sister, 1-year-old Raneem, as his “stinky baby”. When asked what he was learning in pre-kindergarten at the Hospital School he said, “It’s a secret.”
Yassen’s mom, Hagar, was 5 months pregnant when prenatal screening found an issue with Yassen’s heart: it only had three chambers.
At the time, the family lived in Texas, and Yassen underwent the first of what was supposed to be two surgeries to repair his heart. A second surgery, performed at a hospital in California, was not successful, and soon after, it was discovered that one of his heart valves was leaking. The family moved again, to yet another hospital, which ultimately determined that Yassen’s situation had become so dire that he needed the expert care only available at Packard Children’s.
Yassen and his mother—who at the time was pregnant with Raneem—were flown by air ambulance to Packard Children’s, where the Betty Irene Moore Children’s Heart Center is renowned for its 97.3% survival rate.